Sunday, November 2, 2014

New Custom Bag - Leather Luxe

This is the bag I designed for the most recent BeTA Trauma Mama annual fund raising auction.

The winner of the auction wanted a simple black and gold bag that people would recognize as being custom. 
 The base and top of the bag are real leather as are the gold straps (which were covered with a black strap as the gold looked a little gaudy by itself).
 The bag zips shut at the top.  The inside of the bag has lots of pockets and is made with Ripstop nylon which is easy to wipe clean.

Monday, September 1, 2014

Open Bottom Pants for Wheelchair/ Lift/ Sling Use

I've been designing clothes for my mom as she has progressed through different stages of ALS.  I won't be using pictures of my mom out of respect for her privacy and dignity.

As my mom's left arm weakened to the point of immobility, she was unable to dress herself.  Unfortunately her husband, her primary caregiver, has Essential Tremors, and therefore had a lot of difficulty with snaps, buttons, zippers...  He is also pretty oblivious about comfort and fitting (He once fastened my mother's bra so that the bottom band crossed directly over her breasts.  Unfortunately since she cannot speak, and has less sensitivity on affected parts of her body, when I came by in the afternoon, it had been like that all day!  Ouch!)
Back opening dress
When mom was still using a walker, I made wrap dresses and front closing bras so that she could be dressed while sitting on the bed.  When she switched to the wheelchair full time, we tried switching her tops to back openings with velcro or snaps on the shoulders so that she wouldn't have to lift her arms as much (she was still trying to wear t-shirts - which had to go over her arm brace and her neck brace.).  This way the shirt could be pulled up over her arms, and then fastened in back.  Here's a link to how this works.  I called this a "Tulip back"

Tulip shirt front
Tulip shirt back
Electric wheelchair
Once my mom got to the point where she needed to be in a wheelchair all the time to prevent falls.  We quickly started discovering issues with the bathroom.  First of all, the wheelchair didn't fit in the tiny little potty room, so someone had to help Mom rise from her wheelchair, then help her balance until she could hold onto a grab bar mounted on the wall.  She then shuffled until she was in front of the toilet.  We had a second grab bar installed there, and she held on to that for balance.  Since by this point she only had the use of one hand, and that hand was holding the grab bar, that meant someone else had to drop her pants for her (and help pull them back up when she was done).  There was very little dignity to be found in this situation!

Suddenly we needed "open bottom" pants for my mom.

As she became less able to support her own weight, we quickly discovered that she needed a lift (including a lift in her spirits!).  The problem with lifts is that they lift you out of the wheelchair in a sling and then lower you onto the potty - which is great, except when/how do you lower your pants?!  The sling has a circular opening where your bottom "hangs out."  A quick bout of research (found an awesome site called Silvert's with some "open bottom options") and we quickly discovered this meant you had to go "commando" so your clothes had to discreetly cover you everywhere, except your bottom.

 That left mom with 2 options.

One, the tulip backed dress with a cut out for the bottom.  The person looks fully clothed when you're looking down from above.  The sides of the skirt are tucked under the person's legs and the back of the dress goes to the chair seat and stops.  We still had to add access to the PEG tube for feeding (see this post for details).
.Option two was pants, capris, shorts.  This was mom's preference, and with the purchase of a pair of Silvert's open bottom pants and this video which showed me how they worked, I thought we were in business!  She tried out the pants for a couple of days, before I made more, and I'm so glad we waited.

Step one, while still in seated
position pull pants up over legs.
Secure adjustable waistband.
"Flap" will cover hips, but
bottom is exposed when in
seated position.
In theory, these are awesome!  In everyday use?  Not so much.  The crotch seam was sewed so far down that you couldn't easily access the front parts of the body that need "wiping."  That seam had to be opened up to allow the slit to come further toward the waist.  In theory, the generous amount of fabric in these loose fitted pants, and the fact that my mom never sits with her knees spread apart, keeps them from gaping open enough to show the opening.

The worst part?  To secure the snaps in the back - already difficult for someone with Essential Tremors, Mom had to lean forward in her chair - which inhibited her breathing.  Not wheelchair friendly at all!
Original design

Shifted to side closure instead of center back.

So I opened up the left side of the back "flap" and added some velcro strips (could use a separating zipper as well).  That way the flap could be slipped behind the person and then secured on the side (much easier than trying to secure it behind their back).

This worked much better so I altered a pair of her loose fitting (she's lost about 70lbs on her liquid diet), elastic waistband, knit shorts.  Instead of velcro, I used magnetic purse snaps (my new favorite closure!).  It's pretty easy to alter the shorts (although it helped to have matching color fabric for the new flaps needed for the side closure), but I've also drafted a pattern so I can make new ones in any colors I wish.

I can add more details if anyone is interested in doing any of these projects themselves.
Here's my tutorial post about altering existing pants to be open bottom pants.

Saturday, August 30, 2014

Modified Tops for Nursing and G-Tubes

I've been designing clothes for my mom as she has progressed through different stages of ALS.  I won't be using pictures of my mom out of respect for her privacy and dignity.

First she got a  feeding tube, also known as a percutaneous endoscopic gastrostomy (PEG).  This meant she needed access to the port and the carrier for the tube which is kind of like a fanny pack.  Clothing couldn't be tight across the area, and she didn't want to just lift her shirt, because that left her stomach exposed (or worse if she wanted to wear a dress), not to mention that the fabric had to be secured out of the way.

I immediately thought of some of the things I'd made for myself when I was nursing.
Fabric overlaps and secures with Velcro
Stretchy fabric is pulled out of
the way for easy access.

A similar concept with a knit fabric.  No need for Velcro because the fabric was overlapped more since it was stretchy.

I also began purchasing
"arthritis bras" and
altering her bras to
make them open in the front.
 She was actually fairly happy with t-shirts on a daily basis, but wanted some nicer dresses for church.  She'd also begun having issues with the use of her left hand so needed clothing that was easy to put on and take off (no awkward back zippers!).

Voila!  The wrap dress!

Next problem - if you untie a wrap dress, it drapes open like a bathrobe and once again shows everything. So I extended the under panel to go all the way across the body to the other side (in other words, the "wrap" part of the dress was pretty much faux.  The under panel covered the body of the dress and was secured with Velcro in the upper shoulder to prevent it from sagging.  Cut a slit in the under panel to accommodate the PEG/ feeding tube and we were done!

Until the next issue - Being dressed by caretakers and making accommodations for being in a wheelchair!